Wednesday, October 27, 2004
New treatment modalities - compounded creams
Very thoughtful post by Dr. Young (a vetinary doctor) about special creams that can potentially be created by a compounding pharmacy.
http://health.groups.yahoo.com/group/rosacea-support/message/63757
Quotes:
"This is an unbelievable source that is totally untapped in opening up new treatments for ourselves. Compounding pharmacists will even get online and search the new articles and literature for us."
...
"Desensitizing the facial nerves and vessels with these drugs over 4-6 weeks may even decrease our flushing threshold and possibly decrease permanent facial redness."
http://health.groups.yahoo.com/group/rosacea-support/message/63757
Quotes:
"This is an unbelievable source that is totally untapped in opening up new treatments for ourselves. Compounding pharmacists will even get online and search the new articles and literature for us."
...
"Desensitizing the facial nerves and vessels with these drugs over 4-6 weeks may even decrease our flushing threshold and possibly decrease permanent facial redness."
Tuesday, October 26, 2004
Genesis laser for Rosacea by Dr. Darm
If you have been treated by Dr. Darm with the Genesis laser, please fill in a rosacea treatment report form.
[UPDATE] You can also view my experience with Dr. Darm here.
[UPDATE] You can also view my experience with Dr. Darm here.
Thursday, October 21, 2004
Rosacea and Demodex Mites -- possible role?
I personally think too much time is being spent studying this mite. If we got to the root cause of our disease and stopped the flushing and initial progression we would probably not get to the demodex stage. It does not stack up in any way to me, that demodex is a causative factor.
Topical Ketamine
Topical Ketamine has long been used by diabetics to treat diabetic neuropathy, a burning sensation of the skin. Question is... Could it be used on rosaceans? At the moment this is all theory and speculation.
For anyone looking at researching the papers behind these suggestions, Public Medline is the best place to start. Note that these topicals are very much "experimental" at this stage although they clearly hold lots of promise. The great thing is that with a prescription you can could potentially get them fulfilled by a compounding pharmacy.
Couple of abstracts on Topical Ketamine:
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=15101968
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=12974832
Please post a comment if you try these new experimental topicals.
For anyone looking at researching the papers behind these suggestions, Public Medline is the best place to start. Note that these topicals are very much "experimental" at this stage although they clearly hold lots of promise. The great thing is that with a prescription you can could potentially get them fulfilled by a compounding pharmacy.
Couple of abstracts on Topical Ketamine:
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=15101968
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=12974832
Please post a comment if you try these new experimental topicals.
Tuesday, October 12, 2004
Rosacea and sun-damage
Interesting comments by Rick on sun-damage / rosacea and his observations:
http://health.groups.yahoo.com/group/rosacea-support/message/63313
I live in the UK, where we get very little sun -- personally I have never been burn. So it does not cause rosacea for everyone, probably not even a majority. But it seems like sun-damage is one of the causing factors for some people with the predisposition.
On which subject everyone is talking about Linda Sy's ZincO on the support group. Amazing how one product can have such a beneficial effect for such a large group of people with all their intolerances to topical products. Linda developed the ZincO in consultation with the support group a year or two back. We will make large steps in beating this disease by such co-operation.
http://health.groups.yahoo.com/group/rosacea-support/message/63313
I live in the UK, where we get very little sun -- personally I have never been burn. So it does not cause rosacea for everyone, probably not even a majority. But it seems like sun-damage is one of the causing factors for some people with the predisposition.
On which subject everyone is talking about Linda Sy's ZincO on the support group. Amazing how one product can have such a beneficial effect for such a large group of people with all their intolerances to topical products. Linda developed the ZincO in consultation with the support group a year or two back. We will make large steps in beating this disease by such co-operation.
Monday, October 11, 2004
Rosacea and facial burning
Very interesting post by Dr. Young PhD, about facial burning and rosacea, and how he has reduced these symptoms with his own regime.
http://health.groups.yahoo.com/group/rosacea-support/message/63224
Quote:
"I will share with you what has helped me increase my threshold of this neural and vascular sensitivity in hopes that it might help in some capacity."
http://health.groups.yahoo.com/group/rosacea-support/message/63224
Quote:
"I will share with you what has helped me increase my threshold of this neural and vascular sensitivity in hopes that it might help in some capacity."
Rosacea and exercise
Some interesting discussions about rosacea and exercise.
This post is about getting a red face during exercise, but how the exercise overall helped reduce exercise:
http://health.groups.yahoo.com/group/rosacea-support/message/63289
Lots of people seem to find weight work easier on the rosacea than cardio:
http://health.groups.yahoo.com/group/rosacea-support/message/63278
This post is about getting a red face during exercise, but how the exercise overall helped reduce exercise:
http://health.groups.yahoo.com/group/rosacea-support/message/63289
Lots of people seem to find weight work easier on the rosacea than cardio:
http://health.groups.yahoo.com/group/rosacea-support/message/63278
Wednesday, October 06, 2004
Photoderm improvement
Another interesting message from someone who is undergoing Photoderm.
http://www.esfbchannel.com/cgi-bin/yabb/YaBB.pl?board=Rosacea&action=display&num=1096996872
Quote
"My first treatment was a big success for me. I wake up each morning and there is very little redness and when I do flush which is rare it goes away a lot quicker"...
http://www.esfbchannel.com/cgi-bin/yabb/YaBB.pl?board=Rosacea&action=display&num=1096996872
Quote
"My first treatment was a big success for me. I wake up each morning and there is very little redness and when I do flush which is rare it goes away a lot quicker"...
Positive message about IPL / photoderm
Always great to read of rosacea sufferers who are experiencing great results in battling this condition:
http://health.groups.yahoo.com/group/rosacea-support/message/63141
Quote:
"What a difference! Almost all of the broken blood vessels on my face are gone. More importantly, it's now MUCH harder to make me flush. I can exercise again without getting tomato face. My nose has stopped throbbing and pouring out oil. My facial skin feels thicker, stronger, less fragile. My eyes had been a misery, and stopping the flushing has improved them considerably."
http://health.groups.yahoo.com/group/rosacea-support/message/63141
Quote:
"What a difference! Almost all of the broken blood vessels on my face are gone. More importantly, it's now MUCH harder to make me flush. I can exercise again without getting tomato face. My nose has stopped throbbing and pouring out oil. My facial skin feels thicker, stronger, less fragile. My eyes had been a misery, and stopping the flushing has improved them considerably."
Tuesday, October 05, 2004
Tips for rosaceans when skiing (cold weather tips)
Excellent post with tips for protecting the rosacea skin when ski-ing using neoprene face mask and balacalava
http://health.groups.yahoo.com/group/rosacea-support/message/63130
Also one some time back from another poster:
http://www.escribe.com/health/rosacea-support/m19555.html
http://health.groups.yahoo.com/group/rosacea-support/message/63130
Also one some time back from another poster:
http://www.escribe.com/health/rosacea-support/m19555.html
Saturday, October 02, 2004
Steroid nasal (nose) spray can cause rosacea
Warning on the use of steroid nose spray... Not good for rosaceans, apparently:
http://health.groups.yahoo.com/group/rosacea-support/message/63035
http://health.groups.yahoo.com/group/rosacea-support/message/63035
Positive message about someone whose rosacea has improved
A very positive message from someone who is winning against rosacea. It's always nice to read messages like this -- people may not be "cured" in the traditional sense but it seems that this disease can be beated back until it is no longer a problem.
http://health.groups.yahoo.com/group/rosacea-support/message/63023
Quote
"A woman actually told me recently that my skin looks absolutely perfect, like porcelain. As many of you who have read my posts over the last yearcan imagine, I was floored---and totally insanely overjoyed!"... Read on
http://health.groups.yahoo.com/group/rosacea-support/message/63023
Quote
"A woman actually told me recently that my skin looks absolutely perfect, like porcelain. As many of you who have read my posts over the last yearcan imagine, I was floored---and totally insanely overjoyed!"... Read on
